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Kiss My ALS Fundraiser June 25th @ Barcelona

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DH Vancouver Staff Jun 18, 2010 7:29 pm

As some of you may know, June is ALS (also known as Lou Gehrig’s disease) Awareness Month and  in support of her mom, Tina, and others living with ALS, a friend of a friend, Estelle will be hosting an event at Barcelona Nightclub in Vancouver on Friday June 25th, 2010.  Tickets are only $20 and 100% of the proceeds got to the ALS Society of BC. You’re gonna go out on Friday anyways, why not support a great cause!

If you can’t make the event, do what I and others have already done, make a donation online. Please feel free to do so at Estelle’s Walk for ALS website and make a pledge: http://www.als.ca/events/mysite.aspx?fid=5029 and help her reach and shatter their goal of $5000!

Where: Barcelona Nightclub in Vancouver
Date:Friday, June 25th, 2010
Tickets: $20 with 100% of the proceeds going to the ALS Society of BC.
              Government issued ID Required – No minors
              Ticket expires @ 11:30 PM
              For tickets please message or call Estelle @ (778) 773-4122 or
              DM @adoniadonia via Twitter

A message from Estelle:

My Mom, Tina, was diagnosed with ALS in January 2009. The first sign was the loss of muscle in her right hand accompanied by the loss of muscle in her right foot. The weakness of her muscles caused her to fall on a daily basis. First, the doctor thought she must have had a stroke. After the tests returned with no sign of a stroke, they assumed that it may be MS. After 2 weeks at VGH, they came to the conclusion that it was ALS.

At first, my Mom at age 52, was able to get around with the use of a walker. Unfortunately, as the ALS progressed she now relies on her wheelchair and someone to assist her. Although they say most will lose their legs within the first 2 years, it only took 5 months in my Mom’s case. Within 3 months of being diagnosed, she could no longer eat meals by mouth and a feeding tube was surgically put into her stomach. Within a year, she had to have a tracheostomy put in in order for her to remain breathing. This disease has affected her ability to talk, eat, walk – or even merely move. The only movement that remains is in her neck as well as slight movement with her left hand.

As difficult as this past year and a half have been, the ALS Society has given my family support emotionally and physically. They provided her with all the resources and proper equipment required to make our home remain functional for as long as possible. The Society also holds support groups for the families affected and supply information needed on a monthly basis. The organisation relies heavily on donations and community support.

Tina

If you are unable to make it and still wish to donate, please feel free to do so at my Walk for ALS website and make a pledge:

http://www.als.ca/events/mysite.aspx?fid=5029


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DH Vancouver Staff
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